Wednesday, November 20, 2013

November 20, 2013.. My white cell count today was 3.22, hemoglobin-8.7, platelets-56, and HPC 1. 

Seems like we spent the whole day at the hospital today. We had to get the injections both times and also went to check on a question on my UAMS bills. Tonight after the evening injection, we went to a presentation on the myeloma drug Velcade. It was educational and we are glad we went, but we did not get home until about 8pm. A patient at the presentation from California said she spends 6 months out of the year in Austria. She said when she found out she had myeloma, she asked her oncologist what was the best place in the world to go for myeloma treatment and he said Little Rock and when she was in Austria, she asked the same thing and was given the same answer. It makes me feel better about being a patient here.   

While we are in Little Rock, we are totally immersed in myeloma. It is like another world. It would help so much if we could just stop everything and get away for a day or two while we go through this but that is not possible right now. Hopefully things will change.  

I was really glad to see my HPC come up. I hope it will continue.  

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