July 29, 2014.. We made the drive to Little Rock yesterday. We left at 8am after getting up at 5:15am to get started. It just takes us a long time to get ready to leave. We had an uneventful drive here. The weather was good and the traffic was not real bad.

Since my last posting: I had to spend two days in the hospital due to a high fever. They did not find the exact cause of the high fever (up to 104.9). They gave me several rounds of different antibiotics and the fever went away. 

I have been getting the infusions of Kyprolis twice a week since my last visit to Little Rock. I will learn this week if it is helping with the Myeloma and I pray it is.  

We are now getting ready to leave for the hospital. My first scheduled test today is at 11:50am and a PET scan is this afternoon. I have not been allowed to eat anything since last night due to having the PET scan this afternoon. I am sure I will be really ready to eat when I am finally free but that won't be until about 6pm when I am finally finished testing for today. I will have to skip eating tomorrow too since I have the bone marrow biopsy and that is same day surgery (I will be sedated for the procedure).
  
The following was updated later in the day: I got the PET scan today. They injected the radioactive glucose and I waited one hour then they took me to the PET scanner and the scan took about 45 minutes. I also had a echo-cardiogram with contrast injected. That test took longer than I expected...about an hour. I will probably hear the results of these tests when I see the doctor Thursday. I went to get the Kyprolis infusion at 4:30. They had me scheduled to receive it but they did not have a doctor's orders to give it to me. We waited to get the order until 6pm and it never came so I was not able to get the infusion today. I will go back tomorrow and Thursday and get the two infusions. I sure wish I could have gotten it today as scheduled. They have strict rules that a doctor has to make the order for chemo. A nurse or nurse practitioner can not enter the order. I talked to the clinic manager and he said he would find out where the failure occurred in getting the doctor's orders entered for my infusion. 

My white count was 1.45, red count 3.09, hemoglobin 10.1.