November 20, 2014.. Today was a hard and long day. We started the day at the hospital at 7am and were able to leave at 4:30. By the time we were able to leave, I was feeling pretty bad. It seemed the bone marrow procedure did not go as well as in the past. I had to wait several hours after I got to the area where they do it before they finally started to actually work on me and then things were just not as smooth as in the past. Just to complain a bit... I had not had any food or liquid of any kind since about 10pm last night and I asked for a drink of water and the person working with me told me she would get it soon but never did get it. When I finally got to the car, I drank about a quart of water. As soon as I got to the hotel, I laid down and I feel somewhat better now.
One of the bad side effects of the drug I am getting (Kyprolis) to treat the myeloma is congestive heart failure. One of the tests that were run today was ProBNP. I am told this test measures if a person is having congestive heart failure. My test results in the past have always been well within limits but today it was considerably out of limits. My previous results had run in the 70's or so and today it was 369. The top limit is 125.That brings all kinds of questions to my mind about what the doctor will say about that and what Kyprolis is doing to my body.
This morning when I was getting my blood drawn, I asked if they were collecting a ProBNP sample. She said no because it was not on the list to collect. When I met with the Physician's Assistant later in the day, he said I needed to get that test and sent me again to get another draw. They had to stick me 3 more times to get that one sample.
Tomorrow, we move from the hotel where we are staying to an apartment for the remainder of our stay. It will be much more comfortable there and not cost as much. Tomorrow, I have no tests scheduled.
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