Thursday, December 1, 2016

December 1, 2016.. We were at MIRT this afternoon for about 4 hours. Just about everyone was gone by the time we got out. I was correct in my thinking that my condition has changed a lot in a short time. Due to that, my treatment will also change completely. I will be going on a new antibody drug called Darzalex along with Pomalyst and Dexamethason. I have two myeloma friends back home that are on Darzalex and they are doing very well on it. Both are in remission now. I have never been in remission. I hope it works as well for me too. 
The PET and MRI scans showed two small new lesions. The old lesions were gone because of the Kyprolis when it was working. I go on Darzalex next week (hopefully). It is much more complicated getting it than it was Kyprolis. The first treatment is a pretty big deal since some people have reactions to it. It takes 8 hours for the first treatment as they start and stop the treatment to make sure all is ok. From the first treatment, I get them once a week for 8 weeks then I have to return to MIRT for a round of testing to see if it is working. If is working, I continue on but go for treatment every other week. I eventually work up to going just once a month for the infusion of Darzalex. I am so hopeful that it will work for me. It does not work for everybody, about 61% is what I have read. 
On our trip out west recently, I was squatted down and photographing a cactus, and lost my balance and fell backwards. I had really bad pain for a couple of days and thought I was going to have to immediately return home. It felt better after a couple of days but I feared I had broken a rib. The scans I had here did show that I had a broken rib in my upper rib cage.
That about sums up what I have learned today. I am going to cut this shorter than it could be in order to get it sent out earlier. Thank you so much for caring enough to follow this blog and thank you for your support. Thank you for your continued prayers. We appreciate it more than I can say.   

1 comment:

  1. Have been waiting anxiously for your post tonight to see what the Dr said. You had thought as much & it sounds good that you already know about this drug. We will all continue prayers that your body will have no problem with this new one. So sorry to hear about your ribs Jerry!! We love you both so much & will be anxious to get to sit & talk to you both over a burger about it.

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