We left Little Rock this morning at 8 a.m. and got home tonight about 10:10pm. We ran into a huge traffic delay. The traffic was backed up over seven and a half miles. We also had another delay when we stopped to eat supper.
I will have to return to Little Rock for my first appointment on November 6th.
Thank you all for caring enough to read this blog and following along with us but most of all thank you for your prayers.
Wednesday, October 11, 2017
Tuesday, October 10, 2017
October 10, 2017.. Thank you all for the comments and prayers. They mean a lot to both of us.
I finally got to see the doctor today after waiting in the exam room for 2 hours. He reviewed the PET scan and what the reading radiologist had said. He told me there were two lesions showing on the PET. This does not prove this treatment is not working but is a concern. He wants me to come back in one month for full testing. As planned, he increased the dosage of one drug that helps make the Kyprolis work better from 4 pills a day to 8 pills a day which totals 5000 mgs. The good news was he was really pleased that my blood counts were as good as they were. My platelets were 173 and my hemoglobin was 10.1. They did not have the myeloma marker results. I suspect that someone dropped the ball somewhere along the line and they had not been done.
The news was not as good as I had hoped and expected. The myeloma marker blood samples that I had sent in two weeks ago looked really good but the PET scan didn't reflect those good results.
We will make the drive home tomorrow because I have treatment in Kingsport Thursday and Friday.
Thank you Joanie, Shirley and Kathy for your nice and caring comments and also thank you for your prayers.
I finally got to see the doctor today after waiting in the exam room for 2 hours. He reviewed the PET scan and what the reading radiologist had said. He told me there were two lesions showing on the PET. This does not prove this treatment is not working but is a concern. He wants me to come back in one month for full testing. As planned, he increased the dosage of one drug that helps make the Kyprolis work better from 4 pills a day to 8 pills a day which totals 5000 mgs. The good news was he was really pleased that my blood counts were as good as they were. My platelets were 173 and my hemoglobin was 10.1. They did not have the myeloma marker results. I suspect that someone dropped the ball somewhere along the line and they had not been done.
The news was not as good as I had hoped and expected. The myeloma marker blood samples that I had sent in two weeks ago looked really good but the PET scan didn't reflect those good results.
We will make the drive home tomorrow because I have treatment in Kingsport Thursday and Friday.
Thank you Joanie, Shirley and Kathy for your nice and caring comments and also thank you for your prayers.
Monday, October 9, 2017
October 9, 2017.. I got the tests completed today. That will be all the testing that will be done on this trip and I see the doctor tomorrow too find out how the new treatment is going. My appointment is not until 3 p.m. tomorrow. We had hoped to leave after the doctor's appointment but we thought the appointment was for noon so we will have to spend another night here and then make the drive home on Wednesday. I am optimistic that tomorrow I will get a good report on this treatment.
Sunday, October 8, 2017
October 8, 2017.. We had an easy day today. We went to Sam's Club and just took it easy the rest of the day. It felt good to not be in a rush. It was hot and humid in Little Rock today. It was about 90 degrees.
I get all the testing done tomorrow that I will get on this trip. I have a PET scan tomorrow so I will not be able to eat anything for 6 hours before the scan. It should be an easy test day.
I get all the testing done tomorrow that I will get on this trip. I have a PET scan tomorrow so I will not be able to eat anything for 6 hours before the scan. It should be an easy test day.
Saturday, October 7, 2017
October 7, 2017.. We left headed to Little Rock at 7 a.m. Our plans didn't go as we expected. We had planned to stay at Jackson for the night and then go on to Little Rock the next day. We learned at Jackson there was a big homecoming and all the hotels were filled. We proceeded on to the next town which was Brownsville and they were also filled. We don't make reservations just for the night because we always use discount coupons and they don't allow you to make reservations using them. We finally decided just to go on to Little Rock which we did. We were not able to get an apartment as we usually do because they were taken. We're staying at TownePlace Suites and we're okay with that. The truck traffic was unusually bad this time. I think Saturday is a bad time to drive. It is coming down here anyway. I hope you are having a good weekend.
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Sent from my Android device with K-9 Mail. Please excuse my brevity.
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Sent from my Android device with K-9 Mail. Please excuse my brevity.
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