Tuesday, October 10, 2017

October 10, 2017..  Thank you all for the comments and prayers. They mean a lot to both of us.
I finally got to see the doctor today after waiting in the exam room for 2 hours. He reviewed the PET scan and what the reading radiologist had said. He told me there were two lesions showing on the PET. This does not prove this treatment is not working but is a concern. He wants me to come back in one month for full testing. As planned, he increased the dosage of one drug that helps make the Kyprolis work better from 4 pills a day to 8 pills a day which totals 5000 mgs. The good news was he was really pleased that my blood counts were as good as they were. My platelets were 173 and my hemoglobin was 10.1.  They did not have the myeloma marker results. I suspect that someone dropped the ball somewhere along the line and they had not been done.
The news was not as good as I had hoped and expected. The myeloma marker blood samples that I had sent in two weeks ago looked really good but the PET scan didn't reflect those good results.
We will make the drive home tomorrow because I have treatment in Kingsport Thursday and Friday.
Thank you Joanie, Shirley and Kathy for your nice and caring comments and also thank you for your prayers.

4 comments:

  1. Safe travels! Will keep you in our prayers!
    Love you all!
    Joanie & Gary

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  2. I was sorry to read that your PET scan results were not as good as you had expected. I pray that you have a safe journey home and that your test results in a month are stable or better than this week's results. Best wishes to both of you!

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  3. Today is Friday so you should be home by now. Sorry you didn't get the good news as expected but at least it wasn't bad news. Prayers as always for you and I love you. We are still here at Fort Meade, MD visiting Tyler. It is so good seeing him.

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  4. I’m sorry your PET showed some lesions; hopefully, these won’t present much of a problem and the next scan will be better. Praying for you.

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