I really don't know where to start. Dr. Van Rhee's APN, that we like so well, whose name is Diane, is the first one we talked to at the clinic. I asked her first how was everything and she said not good. That pretty much sums it up. The myeloma has been going rampant since our last visit here early in November. I really suspected that things were not going well but when you see it on the images it is shocking. I debated whether or not to post some photos that I made on the screen of the PET scan showing how it was in September then November than December but I decided it might be better not to post them. Dr. Van Rhee said there's no treatment that he knows of that would help me. He also said that he did not think any of the car T-cell clinical trials would help me. The myeloma has become very aggressive and not just in my bones. The specialist that reads the PET scan last time mentioned there was an appearance of myeloma in my liver but this time there was no doubt it was myeloma in my liver. The nurse from UAMS even called after the tests were sent in last week asking if my local doctor knew that my liver enzymes were elevated.
The doctor recommended that I come off of treatment and go on to palliative care. We both do not disagree with that. I'm going to talk with my local oncologist and learn more about it.
I so much wish this blog entry could be better news. I sure do appreciate all of your support and your prayers and caring. It means so much to me and to Reta.