My white count today was 7.90 and my platelet count was 47.
They are still trying to determine about the level of the viruses that did show up in blood tests. They did a couple of specimen draws today to get more information.
I don't know why but as the day progressed I got to feeling pretty bad as I do now. I really look forward to the time when I'm feeling good most of the time.
Monday, August 14, 2017
Sunday, August 13, 2017
Wow! We were surprised at my lab results today. They were even better than what we had forecast in our optimistic minds. My white count was 8.33, my hemoglobin was 9.4, my platelet level jumped up to 40 (it was 27 yesterday). We are very thankful to see this much progress this fast.
Tomorrow I have a breathing treatment at 9 a.m. The treatment is to help prevent pneumonia. Then at 1 p.m., I have the lab tests and review just like today.
Thank you all for all your support in so many ways. It is helping us so much to get through this.
Tomorrow I have a breathing treatment at 9 a.m. The treatment is to help prevent pneumonia. Then at 1 p.m., I have the lab tests and review just like today.
Thank you all for all your support in so many ways. It is helping us so much to get through this.
Saturday, August 12, 2017
We were only at UAMS about two hours today. After I got my blood drawn and tested, they determined that I didn't need anything extra. That was really good news for us and we enjoyed our time off.
My white count today jumped up to 6.83. The platelet count had gone to 27 and the hemoglobin was 9.2 which was lower than it was yesterday by .3.
I don't normally feel as good as usual and I have some other issues but I am slowly on the mend.
Let me say something about what I posted last night about the Parvovirus. It is common in children and they told me that I might have had it since childhood but never been active because my immunity has never been that low. It is not related to the parvo that dogs have. In children it is often called Fifth disease.
My white count today jumped up to 6.83. The platelet count had gone to 27 and the hemoglobin was 9.2 which was lower than it was yesterday by .3.
I don't normally feel as good as usual and I have some other issues but I am slowly on the mend.
Let me say something about what I posted last night about the Parvovirus. It is common in children and they told me that I might have had it since childhood but never been active because my immunity has never been that low. It is not related to the parvo that dogs have. In children it is often called Fifth disease.
Friday, August 11, 2017
Today ended up being a big day for us. My white count rose to 5.05. My platelets were 20 and my hemoglobin, which is been running low, ran 9.5. It looks as if God is allowing the new stem cells to rebuild the bone marrow successfully.
In the blood cultures they ran, they determined that I have an active Parvo virus. They said I could have had it for a long time but since my immunity has been so low, it became active. I got another treatment of the IVIG to help with it. That infusion took about 4 hours and I might have to get additional ones during the next week.
The APN was so pleased with how things were going, she took me off the schedule of getting two antibiotics infusions each day and changed my schedule to only having to be there once a day. We have been going at 9 a.m. and the other appointment was at 5 p.m. so now we have one appointment which is scheduled for 1 p.m. We were really pleased about that.
It seems that recovery is progressing much faster than I expected. Based on what I interpreted that doctor Van Rhee said, this is much faster than what he would have predicted also. Thank you all so much for your prayers for the best outcome for me.
In the blood cultures they ran, they determined that I have an active Parvo virus. They said I could have had it for a long time but since my immunity has been so low, it became active. I got another treatment of the IVIG to help with it. That infusion took about 4 hours and I might have to get additional ones during the next week.
The APN was so pleased with how things were going, she took me off the schedule of getting two antibiotics infusions each day and changed my schedule to only having to be there once a day. We have been going at 9 a.m. and the other appointment was at 5 p.m. so now we have one appointment which is scheduled for 1 p.m. We were really pleased about that.
It seems that recovery is progressing much faster than I expected. Based on what I interpreted that doctor Van Rhee said, this is much faster than what he would have predicted also. Thank you all so much for your prayers for the best outcome for me.
Thursday, August 10, 2017
I meant to post yesterday that they did several cultures to try to find why I am still running a fever. When I take Tylenol, the fever does not show up, but as soon as I stop taking it, the fever reappears.
We spent less time today at UAMS than we have in quite a while. We were there between 4 and 5 hours and it was really good to have that extra time away from there.
My white count today was 3.33 and my platelet count was 13. The platelet count was 14 yesterday so that means the bone marrow is producing even though it's got a long way to go to be at full production. When I got the melphalan chemo, it killed out my bone marrow. The stem cells are used to go in and rebuild my bone marrow. The doctors expected that my stem cells are not in real good shape and would be very slow in rebuilding the bone marrow. I have been very pleased so far at how quickly it appears the bone marrow is being rebuilt. I am very thankful that is the case.
We spent less time today at UAMS than we have in quite a while. We were there between 4 and 5 hours and it was really good to have that extra time away from there.
My white count today was 3.33 and my platelet count was 13. The platelet count was 14 yesterday so that means the bone marrow is producing even though it's got a long way to go to be at full production. When I got the melphalan chemo, it killed out my bone marrow. The stem cells are used to go in and rebuild my bone marrow. The doctors expected that my stem cells are not in real good shape and would be very slow in rebuilding the bone marrow. I have been very pleased so far at how quickly it appears the bone marrow is being rebuilt. I am very thankful that is the case.
Wednesday, August 9, 2017
My white count today jumped to 2.76. My platelet count was 14 and that has been without adding additional platelets for 2 days now. I did not get a growth factor shot today since my white count had exceeded 2.0 so I expect that my platelets will now start to recover.
Today I talked with a fellow in the waiting room, before I went in for my infusion, and his wife has myeloma and they are from Newport News, Virginia. I was surprised to find out that he grew up in Kingsport and knew a lot about the area.
We both would like to say a big thank you to Crossroads Methodist Church in Kingsport for sending the nice care package they had put together. It is much appreciated and will be used.
Today I talked with a fellow in the waiting room, before I went in for my infusion, and his wife has myeloma and they are from Newport News, Virginia. I was surprised to find out that he grew up in Kingsport and knew a lot about the area.
We both would like to say a big thank you to Crossroads Methodist Church in Kingsport for sending the nice care package they had put together. It is much appreciated and will be used.
Tuesday, August 8, 2017
I started the day by running a slight fever and feeling fine, but as the day progressed I felt much worse and the temperature went over 102. I have not mentioned it in previous posts but I have been having a problem with having low blood pressure. When I went back for the 5 o'clock appointment today they got very concerned because of my low blood pressure. They were going to send me for an EKG but that section was closed for the day. They thought they were going to have to send me to the emergency room but after I had ice bags under my arms for about an hour, my temperature came down and my blood pressure got in better shape.
My white blood cell count today jumped to 1.64. My platelets did not drop as much as they usually do so I'm hoping that this is an indication that my bone marrow is now producing platelets.
As I write this, my temperature is normal and that is the first time in several days that it has been normal.
My white blood cell count today jumped to 1.64. My platelets did not drop as much as they usually do so I'm hoping that this is an indication that my bone marrow is now producing platelets.
As I write this, my temperature is normal and that is the first time in several days that it has been normal.
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