July 11, 2016.. I got treatment today starting at 11am and was in the infusion area for about 4 hours for the treatment. The treatment does not take that long but when there are frequent delays, it really adds up. Sometimes at home, I am there for 6 hours for one treatment. In case I did not mention it, I get 6 treatments per month. The attending nurse had trouble getting blood samples (enough to fill 14 tubes). She first stuck my right arm and said she could not get blood there then she stuck the left arm...she could not get blood there either. She called on another nurse to help her and she got it at another location on the first attempt. I still have not gotten to where I like to get stuck and was hoping they would take it from my port. They could not get all the tubes from the port due to heparin used to flush the port contaminating and affecting two of the samples so that meant I had to be stuck.
The APN went through lots of questions about meds, pains, etc. They cover lots of things like listening to my lungs and doing some poking and feeling. I felt like I had gotten a pretty good exam when I was finished. She did request an added test for my blood samples for vitamin D. I felt sure my vitamin D level was ok since I take 5,000 units per day on my own and I am out in the sun some. It was not ok on my level and she called me in a prescription for 50,000 units taken once a week. She felt it was important that I get my level up to normal.
Everything else the rest of afternoon went pretty uneventful.
I didn't mention last night we were so blessed to get an apartment again this time from Home Away from Home ministries. It is a single bedroom apartment and close to MIRT. We have stayed in this complex (Fifth Avenue Lofts) before but not in this apartment.
Tomorrow at 8am, I am scheduled for my bone marrow biopsy. It will be a sedated one so I am not dreading it like I did the ones I used to have that were not sedated. Boy! Did they hurt! After that is done, I will have treatment again and after that, I will get an Echo-cardiogram. That is to check to see if the Kyprolis I am getting in treatment is causing any heart damage. Which is one of the side effects.
That pretty much sums it up for this Monday.
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