Thursday, July 14, 2016

July 14, 2016..  As I write this, there are tornado warning sirens going off just like they were when we were here in March and a bad storm is occurring. This must happen often here.. 
We got good news again today. The doctor said that by all the test results, he is ruling I am stable. He said since he increased the Kyprolis dosage, my numbers have improved a bit. We are very, very thankful to get this news. I asked about the CD numbers on the H/S studies that I posted the other night. The APN said that the changes were due to treatment and there is no need for me to be concerned about it. That eased my mind quite a bit. I stay on the same treatment plan as I have been on. I asked about going to another treatment like Ninlaro (just approved by FDA in November last year) and he said it was not as potent as Kyprolis and I should stay on Kyprolis. I explained how much we wanted to take a long road trip. He said I could do that if I could work out treatments while gone and it would also be ok to infrequently add an additional off-week to my regular off-week. I think that would be a great help in scheduling a cruise if we decide to that early next year. 
I am scheduled to return for the same testing in November. His APN told me they would have put me on a 5 or 6 month return if there had not been an elevated pressure showing in some part of my heart (I think it was higher pressure in the pulmonary artery). This is most likely caused by the Kyprolis treatment. They will be keeping an eye on this in the future. 
As I said, we are very happy with the news we got today. I feel as if we have received a big blessing, and I hope you feel that way too. Thank you all who have read, followed, cared and prayed for us as we have been on this trip. 
Sorry for the later than planned posting. The storm caused an Internet outage.    

2 comments:

  1. Thank you God!!! Such great news Jerry!!! And a trip might be in the works for you???? !!! Even some extra days fantastic!! We are so thankful for the wonderful news !!! God be with you as you travel home!!

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