Wednesday, November 8, 2017

The news we got today is not the news I wanted to hear. I don't know where to start telling the news I got from the doctor but I'll do the best I can. He said basically the treatment I have been on has not worked and the myeloma is very aggressive and has advanced. I am on the strongest treatment now that I am suited for. That is the treatment that matches my gene expression profile  He showed me the PET scans and MRI scans and it appeared to me to be as bad as it was before I got the stem cell transplant. He's taking me off of the drug Viracept and putting me on an old drug cytoxan. He is doubling my dose of dexamethasone and continuing with Kyprolis. He was very compassionate and caring as well as his APN, Diane, that we think so much of. He suggested that I consider going off of treatment and starting palliative care. I told him I had never given up on anything and I didn't want to start with this. I will continue treatment. He went so far as to say that I should spend as much time with family this Christmas as I could.
I keep in mind that the doctor is not in charge of what's going on with me. I will continue to do what I can to help fight this disease and trust God to take me through it if He so chooses.
Thank you for your prayers. I sincerely appreciate them. A special thank you to Kathy, Joanie, Shirley, and Darlene for your caring and supporting comments.

8 comments:

  1. Jerry, I am so sorry you got news you weren’t expecting today. After everything being so positive, I’m sure it was very difficult to hear. We will continue praying for you as always and we hope to see you real soon.
    We love you both.
    Joanie

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  2. P.s. Please let us know if there is anything we can do for you...

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  3. Jerry & Reta,
    I was shocked to learn the report you received today, as I know you were too, especially after you had been feeling so much better. I admire you for being
    able to summarize and document this news for your records and to inform us.
    As you stated, your doctor does not control your future. I pray that God will comfort and care for you and heal you. I recently read "God moves in His timing, not yours. He sometimes waits until the last second before he gives you what you need." I hope you can get some rest before you drive home.
    Love to both of you.
    Shirley

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  4. Sorry to hear your disappointing news. I’m sure you are filled with mixed emotions. I’m glad your APN was there that you have become attached to while the Dr spoke with you both. Unfortunately your myeloma is putting up a very strong battle. Aggressive is an understatement for your disease in that it recovered itself so fart after pushing it back to nothing. Please give yourself plenty of time to recover from this news. I know it was both a shock and disappointment. You can revisit the doctors words another day. For now you do what you think is best for you. Talk to God and he will guide you. I love ❤️ you uncle Jerry and aunt Reta

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  5. Jerry you’re right we never give up & the power of prayer is surrounding you today. I can only imagine how you must be feeling about the news we are too for the last get together with y’all you looked great & you said you felt good. As Kim said above talk to God & he will guide you. We love you both & any thing we can do to help please let us know. Love you both

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  6. Jerry, I’m so sorry about this news but at the same time I’m so proud of you for having that positive attitude! Having known you since forever and growing up with you, I know what a strong person you are and you’re a fighter!! A very stubborn fighter who never gives up!! God’s got this and I know you and Reta have a great faith. We are continuing to pray. ❤️

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  7. Jerry and Reta, I am so sorry that you got that news, you have been feeling so much better and you looked great. Never, never ever give up. God is the one in control. Hugs to both of you, Darlene

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  8. Nope..that is not what we what to hear or will accept. God will bring us through. We will continue to fight and move forward with treatment. So sorry this was the news you received. I am praying extra hard. I love you Dad and will see you when you get home.

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