Today was a long and hard day. We arrived at the myeloma Institute at 7 a.m. and we were able to leave at 6:50 p.m. tonight. My hemoglobin has not been running low recently at home but it has dropped quite a bit with these tests I had yesterday and today. They told me I would have to have a unit of blood and that was where the problems for the day came in. We completed the scheduled treatment just fine and left to go to another appointment for an echocardiogram. When we returned from that appointment I thought everything would be ready to go with the unit of blood but I was wrong. I had another appointment scheduled to start at 2:15 for the PET and they are not flexible on when a person arrives. If you're not there on time, they take you off the list. I realized while I was getting the unit of blood, which took about an hour and 20 minutes, I was not going to be able to make it to my appointment at 2:15. I called them and told them of my dilemma and they said to come whenever I finished getting the unit of blood. When I got there someone else had been assigned to my slot of time and I was scheduled for 45 minutes later. That movement in the schedule caused me to run into another conflict with my scheduled MRI. They took me off the main MRI schedule and put me on a another schedule where they would work me in as time was available. This was due to my not arriving at my scheduled appointment time. This MRI was 45 minutes whereas the MRI scan yesterday was only 30.
I'm sorry these posts are later than I'd like for them to be especially since most of you are in another time zone, but we just finished eating supper and getting things cleaned up.