Wednesday, August 9, 2017

My white count today jumped to 2.76. My platelet count was 14 and that has been without adding additional platelets for 2 days now. I did not get a growth factor shot today since my white count had exceeded 2.0 so I expect that my platelets will now start to recover.
Today I talked with a fellow in the waiting room, before I went in for my infusion, and his wife has myeloma and they are from Newport News, Virginia. I was surprised to find out that he grew up in Kingsport and knew a lot about the area.
We both would like to say a big thank you to Crossroads Methodist Church in Kingsport for sending the nice care package they had put together. It is much appreciated and will be used.

Tuesday, August 8, 2017

I started the day by running a slight fever and feeling fine, but as the day progressed I felt much worse and the temperature went over 102. I have not mentioned it in previous posts but I have been having a problem with having low blood pressure. When I went back for the 5 o'clock appointment today they got very concerned because of my low blood pressure. They were going to send me for an EKG but that section was closed for the day. They thought they were going to have to send me to the emergency room but after I had ice bags under my arms for about an hour, my temperature came down and my blood pressure got in better shape.
My white blood cell count today jumped to 1.64. My platelets did not drop as much as they usually do so I'm hoping that this is an indication that my bone marrow is now producing platelets.
As I write this, my temperature is normal and that is the first time in several days that it has been normal.

Monday, August 7, 2017

Today was another day that I did not feel well. We were at UAMS from 9 a.m. until 7 p.m. and during most of that time I was running a fever and late in the afternoon it went up to 102. The doctor thought the fever could be from the stem cells ingrafting. They were wanting to put me in the hospital but I talked them out of doing that.
I received one bag of platelets today and a unit of blood. My white count today was 0.71.

Sunday, August 6, 2017

I felt better today for most of the day. We were at UAMS from 9 a.m. until about 4:30 today. I received the IVIG treatment with no problems and that took between 4 and 5 hours. My white count yesterday was 0.21 and rose today to 0.43. I expect it to be making some large gains in the next day or so. The nurse said the growth factor shot that I get each day is causing the stem cells to produce white blood cells instead of producing platelets. That will continue as long as I am on the growth factor shots which should stop when I've had two days higher than 2.0 on my white count. I look forward to when my platelets start to increase on their own. After I got the second bag of platelets last night, my count was 22 and today when they were checked, when I first got there, my platelet count was 11. I received another infusion of platelets today and the count went to 29.
Let me explain why I went on this new and stronger antibiotic that I have to get two infusions each day. I was running a slight fever at times and they didn't want to take any chances on me picking up something else so they started me on this more powerful antibiotic. It was done more as a preventative than it was a solution to an existing problem. As far as I know, I will only be on this antibiotic for six more days/twice a day.
Thank you all for your wonderful and caring support. It is much appreciated.

Saturday, August 5, 2017

Today has been a trying day. We arrived at infusion 4 at UAMS at 9 a.m. and we're still here tonight not having left today and it is now 7:25. There is some possibility that I will have to spend the night in the hospital because of a platelet transfusion I got earlier. It did not raise my platelets and my platelets are at a critical level. I have just received another bag of platelets and waiting now for the lab results. People here in the infusion area had to stay over since the infusion area closes at 7 p.m. If this new bag of platelets does not bring my level over 10, I will have to stay in the hospital tonight so they can give me more platelets.
My white count did rise a little today and is 0.21. I think that means that it is on a steady increase now.
I will try to post another note later to let you know if I did have to stay in the hospital tonight.
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This posting did not go out when I intended. For some reason, when I am at UAMS my email does not go out and I have to send it another way. I am updating this now at 9:33pm and the good news is my platelet count went to 22 after the last infusion of platelets. That means we did not have to spend the night in the hospital and all is okay. I am feeling better tonight than I have the past several days. I hope this continues.
I received two bags of platelets and one unit of blood today.
I will have a similar schedule tomorrow at UAMS. I have to be there at 9 and then again at 5 but they tell me that I will have to have something called IVIG and that takes quite a few hours in addition to the other things I will have to get. The IVIG is an immunity building infusion. I don't know much more about it than that. It may end up being another all-day event.

Friday, August 4, 2017

I had another bad feeling day today. My white count did rise to 0.17. My platelets was 6 before the infusion of platelets. I got one bag of platelets today and one unit of blood. I don't know if the small rise in my white count means that it is turning around or not. I will know in the next day or so. The worst part of these bad feeling days are the issues I have with my digestive tract.
The APN put me on a different antibiotic today. It will require me getting two treatments each day. That means we will be going to UAMS in the morning at 9 a.m. and in the afternoon at 5 pm. This should continue for about eight days.

Thursday, August 3, 2017

Today was another day of not feeling well. The nurse assured me that I was right on target for how I should be feeling now. The APN threatened me if I did not start eating that she would have me admitted to the hospital and fed through a tube. I think that has convinced me.
My white count today was 0.08. My platelet count was 12. I received a unit of blood today. My blood counts will not recover until the stem cells have found a place to live in my bone marrow and are producing as bone marrow. No one knows when this will be.