I saw doctor Van Rhee today and I will explain as best I can what he explained to me. He had the images for the PET scan that was done yesterday. He explained that even though the myeloma markers had gotten better the images when compared to the June 7th images were worse now. I could easily see for myself the images were worse now than they were when we came in early June. Since I have gotten the vdt pace, it should have improved the situation greatly but it had not. The scan showed hot spots all over my body. There are doubts now the high powered melphalan will reduce the myeloma as it should. He said to keep a positive attitude and hope for the best. I will continue on with the stem cell transplant as I had planned before. As I write this we're waiting to get the central line installed so that they can give me infusions of my stem cells. We have waited here for over 3 hours and still have not gotten anything accomplished. I thought I would use this time waiting to catch up on the blog.
My platelet count had gained to 30 today from 29 yesterday. I have mentioned in the blog about my Kappa free light chains going down to about 7 after I got the vdt pace. They have steadily increased to 10 and then 20 and today they were 44. These big increases have been in a short amount of time. This is really not good.
As you can see I really need your prayers in order to stop this awful disease. Thank you.
Continued prayers Jerry!
ReplyDeleteWe love you both.
Gary & Joanie
We will keep praying Jerry!!! Our love & hearts are with you both!
ReplyDeleteMy thoughts prayers and warm thoughts go to you tonight sweet uncle jerry. We all must remain positive as the doctor has asked. You will be in my thoughts tomorrow. I would love to visit if possible this weekend but we will discuss that later. I love you both
ReplyDeleteThanks for the blog update. I pray numerous times throughout the day for you. I know God will deliver us through this. Love you both.
ReplyDeleteThanks for the blog update. I pray numerous times throughout the day for you. I know God will deliver us through this. Love you both.
ReplyDeleteYou're definitely in my thoughts Jerry. We are praying for you and know that God is the ultimate physician.
ReplyDeleteEven though I have not had internet access the last few days, I pray every day that the doctor will make the right decisions for your treatments and that God will heal you from this disease. May God comfort and care for both of you. I wish I could give you both a hardy hug. Love, Shirley
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