Wednesday, July 5, 2017

I thought I would do this blog post earlier today even though there might be something happening between now and bedtime since I had good news to pass on.
Both of Dr. Van Rhee's APNs came in this afternoon and brought the latest results of my myeloma markers. They were very pleased that my Kappa free light chains had improved greatly. Of course I was too. I had been very concerned. The test on Monday was over 16 and today it was only over 8, normal is about 2. In the photo of the plot they brought me, you can see how high the Kappa free light chains got before I got this latest chemo. This chart goes back to August of 2013. I had feared that this chemo, which I've had two times before, would not bring the counts down and I am so very thankful that it has worked. In April of 2013 and in November 2013 I got it which was part of the stem cell collection process.
The information that I had received about when Dr. Van Rhee is going to return has been incorrect. The hospitalist told me he was going to return on Wednesday but it is not this Wednesday but a week from now. The APNs predicted that I would be in the hospital for another week or two. I won't get to leave until I'm making platelets again. I received one bag of platelets today and one unit of blood.
I expected my white count to take a big jump up today but it didn't it actually went back down to 0.06. The APN said it was normal for it to vary this much before it starts up. She also said it wasn't as important for the white count to go up as it was the platelets. They can do more to control the white count by giving me the growth factor shots.
Thank you for the comments. They are much appreciated. I hope you have a nice evening.

4 comments:

  1. Jerry and Reta, Great news. Sorry that I had not commented the past few days, I was reading the post but had trouble posting. My computer is acting up and as you know I am not tech minded. I know being in the hospital is not any fun but feel better you are there getting excellent care. You both are in my thoughts and prayers each day. Hugs, Darlene

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  2. Jerry,
    I was happy to read your report of the improvement in your marker and to know that your other measurements are not out of line with what the APNs expected. I know that helps make your hospital stay bearable. Like you, I was sorry to learn that your doctor will not be back until next week. The medical profession sure makes a person develop patience. However, it is good to know that you are getting the best care possible.
    Love to you and Reta.

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  3. That is good news, Jerry! Praying those numbers will continue to improve. Love to you both.
    Joanie & Gary

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  4. So great to hear this Jerry!!! Sorry about the Dr not being back when expecting!! Continued prayers that all keeps working

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