Thursday, July 13, 2017

Today was a very busy and sometimes hectic day. During breakfast, we had two doctors and two APNs in the room at one time. One of the doctors was Van Rhee. He told us he plans on doing a stem cell transplant in about 2 weeks. He has some concerns about it which gives me concerns also. The main thing that he is concerned about is developing into MDS. MDS is deadly. Since I had a poor stem cell harvest, it would tend to create a situation where MDS could happen. He does not think the chance of that happening would be greater than 10%. He said at this point we don't have a lot of options. He thinks there'll be about a 4-week recovery after the transplant. He said my numbers would be very slow in coming back up due to the way my bone marrow recovers. In preparation for the stem cell transplant I will have to have a whole new round of testing similar to what I have when I come to Little Rock each time. Today I went for an echocardiogram and a pulmonary test just to see if I can make it through the stem cell transplant okay. Tomorrow I go for a bone marrow biopsy. The remainder of the tests will be done next week. Thank you all for your prayers. I appreciate them more than I can say. I hope you will continue to pray as we both will need them.
The last few days I've noticed the temperature going up at home inside the house. It has continued to go up even though the heat pump indicates it is running. I called Custom heat and air conditioning today and had them come out and check it and they found the compressor has gone bad. I don't know why things like that happen when you're away from home but it seems like that's the way it happens. At this point, I plan on getting them to repair it even though we are not home.
My white count went from 1.25 to 1.76 today. I will go off the growth factor shots soon and when I do, the doctor said they will drop again but that is normal.
Joy, thank you for the nice comment. I agree with you growing up back then has a lot of good memories.
I hope everyone has good days ahead.

5 comments:

  1. Even though you did not want to hear part of the doctor's message today, at least you know what will happen next and the timing. I pray that the results of your tests permit the stem cell transplant to proceed and that it will be successful. May God bless, comfort and care for both of you. It is good that you are tech savy to monitor what is going on in your house. You can have the compressor replaced before you get home and not return to a hot house and deal with a problem immediately.
    Love to you both.

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  2. Jerry, Praying for you both each day and that the SCT will go well. Hope the BMB shows good results. We are going to miss you two again this Saturday. Hugs to both of you, Darlene

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  3. Jerry, is there anything I or Gary can do to help you all? We are available if needed.
    Love you all!
    Joanie

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  4. Jerry, will the stem cells be from a donor?

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  5. Jerry I'm sure you & Reta are very concerned about the stem cell transplant but your Dr & God & all of our prayers will help you trough it!! Just one day at a time Jerry!! We love you

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